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Welcome to my web site!
My name is Aime and I was born with a rare syndrome called ‘Mowat Wilson Sydrome’
Mowat Wilson Syndrome was only discovered in 1998 and only occurs once out of every 20,000 births.
This web site tells the story of of life so far and how this rare sydrome effects both me and my family.
The web site will also provide some useful information on Mowat Wilson Syndrome as well as provide some practical help to other parents who have children with MWS.
Please feel free to browse the site and view my photos and videos as well as read my story. We promise to update it regurlary so you can keep track with my progress. I would also love to hear your comments or stories, so please feel free to post on my blog!
I hope you enjoy the web site and thanks for visiting.
Aime Exell
