Useful Links
www.cafamily.org.uk/Direct/m40.html - a website with a good bit of information about MWS and a website that is very helpful for families with disabled children.
www.makingcontact.org/index.php?ci=1062 – from contact a family website but families who have children with MWS that you can contact, unfortunately you have to pay but its worth it.
www.mowatwilson.org/Key_of_G.htm - a screener of a documentary about a 22yr old man with MWS
Mowat Wilson Support Group
13 Barry Avenue
Ingol
Preston
Lancashire,
UK
Tel: 01772-760119
Email:
support@mowatwilsonsyndrome.co.uk
Internet:
www.mowatwilsonsyndrome.co.uk - the british support group for families with
a family member with MWS
MowatWilson.org
4009 Tyler William Lane
Las Vegas, NV 89130
Tel: (702)658-5391
Email:
davec@mowatwilson.org
Internet:
http://www.mowatwilson.org - a family built website about their grandson
who has MWS
Liz Evans : PO Box 881, Kogarah NSW 1485, Australia. Phone +61 423 147 068. Fax +61 (2) 4655 1674. Email : lizevans@unsw.edu.a A lady who is collecting data and performing an MWS project, that you can contact if you wish to take part.
www.specialneedstoys.com – a website with some helpful information about products for children with additional needs.
www.fledglings.org.uk – a website where you can order a catalogue for a variety of products to help with disabled people, young and old.
www.familyfund.org.uk – a website that might be able to help you with raising money for expensive equipment needed for a disabled person.
www.face2facenetwork.org.uk - a website to help put families in contact with each other with similar disabilities within the family unit.
www.makaton.org – a website about a particular way of signing that some find helpful for communication.
www.sensetoys.com – a website with a variety of products for disabled people.
www.special-needs-kids.co.uk – a website with information and a variety of products for disabled people.
www.tomcatspecialneeds.co.uk – a website with a variety of products for disabled people.
www.wessexsleepcentre.co.uk – a website with a variety of beds for disabled people.
www.racketys.com – a website with a variety of clothing for special children.
www.bagbooks.org – a website with a variety of multi sensory products.
www.seenin.com – a website with a variety of clothing for disabled people.
www.cerebra.org.uk – a website for brain injured children with a great posting library.
www.smirthwaite.co.uk – a website with a variety of products for disabled people.
http://geneclinics.org/servlet/access?db=geneclinics&site=gt&id=8888892&key=dcWQpJnjDAgOF&gry=&fcn=y&fw=Cp5K&filename=/profiles/mws/index.html - a very thorough article covering MWS.
www.mowatwilson.org/Biography%20Files/MOWAT-WILSON%20SYNDROME%2012-05.pdf – another link about MWS.
www.ncbi.nlm.nih.gov/sites/ga?disorder=Mowat-Wilson%20Syndrome – resources for MWS
http://jmg.bmj.com/cgi/reprint/40/5/305 - an articule on MWS. You will need to do a one off registration to read the whole article.
http://jmg.bmj.com/cgi/content/full/41/2/e16 - an articile on MWS
www.humgenet.uni-erlangen.de/2k/AGRauch_Summary.html - an articule on MWS
www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=16053902&dopt=Citation – an article on MWS
www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=2152 – an article on MWS
www.irsc.org – internet resources for special children
http://news.bbc.co.uk/1/hi/health/6547955.stm - an article on a UK family with an MWS child
www.afasic.org.uk – a website of a UK charity to help children and young people affected by speech